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Rank: Advanced Member  Groups: Registered
Joined: 4/16/2011 Posts: 36 Location: Northumberland
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Hi all, I just wondered if getting mouth ulcers is part of RA. I have constantly had one (in various parts of my mouth) since I was diagnosed. Good job my appetite is so poor, too painful to eat at times. Any advice would be really appreciated.  Pet xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Pet, for me it's a side effect from the Methatrexate are you taking plenty of folic acid. Glenys.
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Rank: Advanced Member Groups: Registered
Joined: 4/16/2011 Posts: 36 Location: Northumberland
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Hi Glenys, I havent started the mtx yet, going to start on 6 june, have only had joint injections so far. i dont think it is any medications causing the problem which is why I wondered if ulcers were something associated with the RA. I rarely had them before and now have one constantly. Thanks for your reply though, I will look forward to more in the future perhaps 
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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i am on mtx but not had ulcers YET thankfully but now on injections so that could change, i did change my diet which i feel works for me but who knows what lies ahead,mtx side effects keep lurking in the background and seem to get us when least expect it, i also only take 1 folic,all the best.
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Rank: Advanced Member Groups: Registered
Joined: 4/16/2011 Posts: 36 Location: Northumberland
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Thanks Dorothy. What is the advice regarding diet with RA? Its about the only thing I havent researched. Is a specific diet sheet available somewhere?
Hope you are ok on the injections xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Pet,
I have sufferred mouth ulcers from the word go . I was diagnosed late 2008.
They are horrible things are they not ?
Yes it does effect your appetite.
Rose x
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Pet
Regarding diet, I was told to eat what I want unless it affects me then obviously stop eating it. How would you know?
Sheila x
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Rank: Newbie
Groups: Registered
Joined: 5/11/2011
Posts: 8
Location: Accrington
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Hi Ive suffered mouth ulcers all my life but nothing prepared me for the ones i got with methetrexate! I have tried everything on the shelf for them and the only thing that helped was some little steroid pills that the dentist prescribed for me.. you let them dissolve in your mouth and they work too..
Jue
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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hi, i did read on here some folks cut out red meat, im not a fan of it anyway but i do watch my dairy intake and only have bread once a week, i use all sorts like couscous,now eat lots of fruit,i try too buy fresh as much as poss but always have frozen as a back up ,i just played around but it is kinda each to what works,my husband had diabetes and he got mouth ulcers he was told cut down on dairy and yeast so i tried it, i hope the mtx goes ok too thanks,so far ok but early days.try and catch lynn w she is a world of info
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Well, here's LynW but she doesn't have an answer! I don't think the RA in itself will cause the mouth ulcers but it will make you more susceptible if your immune system is compromised due to certain RA drugs. Methotrexate, Leflunomide and a few others are known to cause mouth ulcers as a side effect. I asked for some Orabase a few weeks ago, the only thing I have ever come across that actually works on ulcers ... they don't manufacture it any more according to my GP. What a blow!! Dietary factors work for some people although to date evidence is non-existent. A sensible approach is the best way forward to ensure you get all the necessary minerals and vitamins provided by a varied diet. Lyn x
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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thanks lynn, so far so good for me but time will tell.
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Rank: Advanced Member
Groups: Registered
Joined: 12/6/2009
Posts: 40
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Hello,
I too suffer from ulcers. They started when I was on Methotrexate and I saw an Oral Health Consultant. He told me to take "friendly bacteria" such as is found in Activia Yogurts. I actually went to Holland and Barrett and got capsules to take which have the baceria in them. They are called Acidophylus. There have been 2 studies done on this bacteria and both have come to the conclusion that it helps prevent ulcers.
Having said that, I still get them. I stopped Mtx a year ago and have been on Penicillamine since then. So, I don't know if the bacteria is really helping or how much worse the ulcers might be if I was not taking the capsules.
Hope this is of help.
Karen
x
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